No One’s Listening – A Report
MPs call for urgent changes to sickle cell care after inquiry finds “serious failings”
The report was published today (15th November 2021) following an inquiry into avoidable deaths and failures of care for sickle cell patients.
An All-Party Parliamentary Group (APPG) inquiry report published today highlights shocking failures as cross-party MPs call for major changes in care for sickle cell patients.
The groundbreaking inquiry, led by Rt Hon Pat McFadden MP, Chair of the APPG on Sickle Cell and Thalassaemia, has found “serious care failings” in acute services and evidence of attitudes underpinned by racism.
The toolkit is a collection of materials that can be used to help manage health and keep track of important information regarding sickle cell disease (SCD).
The Living Well With Sickle Cell Disease: Self-Care Toolkit has multiple uses. It is designed to help sufferers and caregivers with the management of disease, medical care, services, and health providers.
The toolkit also will help communication between the many health providers and service providers that are involved with patient care.
News
Sickle cell patient files complaint against Kingston Hospital for negligence
Daniela Williams, 22, had planned a short visit to a family friend in Kingston from her home in Scotland. She didn’t expect to find herself at Kingston Hospital battling a sickle cell crisis. What’s worse is she did not expect the cold reception she received when she arrived.
News
Mary Adeturinmo is a 29-year-old from London, Speaking about the launch of the NHS campaign, she said: “When I suffer a sickle cell crisis, the pain can be in my legs, arms, back, and it’s excruciating – I need immediate help, an ambulance and strong doses of painkillers in order to get my symptoms under control.
Information
Advise on measures to prevent (or reduce the risk of) complications of sickle cell disease.
Provide support to people with chronic complications of sickle cell disease in primary care.
Help people with sickle cell disease understand how to manage their illness and when to seek urgent medical advice.
